Project Care For The Rare

This project will provide therapeutic treatment to several boys from across the globe with the intention of slowing down the progression of DMD. Every single penny donated for Project Care for Rare will go directly to affording this treatment protocol for these children. All funding raised will be distributed for cost of treatment and related travel expenses for the families. The more funds we are able to raise, the more children we are able to help. 

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Our promise to our supporters and to the DMD community are:

That we will be transparent with our findings.

All funds raised for Project Care for Rare will go directly into obtaining the treatment for the children and provide the ability for the families to travel for treatment.

We will report back in one year’s time to the community with more specific, objective, and scientific data.

 

 

We believe that each child in the program will see significant benefit, however, we promise to report back with the data, whether it’s as positive and promising as we hope, or if it falls short of expectations.

 

Data and results are not effective or productive unless they are made available and known to the community in helping others make their own decisions about treatment, and hopefully spurring interest in others to create novel and effective ways of battling DMD.